Despite some forward progress, the doctors were still concerned about her development so an MRI was ordered a few weeks ago. The day after the MRI, a nurse called to break the news that Ashlyn has a malformation in her brain called Chiari Malformation. I dropped to floor in tears.
Chiari Malformation is not life threatening, but it is quality of life threatening as it can cause headaches and damage the central nervous system (among other symptoms).
Since the phone call with unfortunate news, Ashlyn has been referred to a pediatric neurologist but that appointment isn't for a few months. She visited a neurosurgeon last week only to find out that she is now being referred to a pediatric neurosurgeon at Duke Children's Hospital, which is four hours away.
I stand in awe of God's grace. My faith has not swayed. I am not angry with God. I am sad for Ashlyn and my prayer is that she will not have to suffer ill effects due to this condition, now and in the future. I want to protect her but I know God is already doing that.
We are humbled by the amount of love, prayers, and support for Ashlyn and for us as we try to make some important decisions regarding her health.
I have more details about this journey on my other blog Raising Three Girls if you would like to follow Ashlyn's progress.